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btw some of the supplements could be making things worse for you, maybe try removing them first see what happens. I'm not suspecting any one in particular, though vitD should be first to look at imo.
About 8 months ago, I was prescribed doxycycline for 2 weeks, and after one week I had the worse flare of all my symptoms. It was very scary as I've never been this sick before. Luckily, after several weeks I returned to my regular ME/CFS baseline.
What are the best meds to reduce neuro inflammation?I take loads of supplements: omega 3 oil (with some omega 6 or I get hard as rocks breasts), curcumin, high dose co q 10, glutathione, toconutrinol, teavigo, cats claw, vit D3 ......... and the neuro-inflammation is getting rapidly worse. LDN is at the top of my possible meds list, any other ideas?Thanks !
The COQ10 could also be a culprit if you are into Cheney's heart testing of supplements. I think it helps some people and not others. I don't think I've ever had a problem taking it, but I wouldn't rule it out.
CoQ10 in an hypoxic environment can actually increase oxidative stress. It's another that does not test well on echo and one bit makes me real sick. I'm very sensitive.What does better and tests well on echo is Idebenone, synthetic CoQ10. It got me off my death bed. I had to start very slow. It took me over a year to work up to how much I take now. I get mine at Smart nutrition. One brand Idebenone I tried was cheaper but may as well have been water. Idebenone is far cheaper than CoQ10 and takes way less to do as much antioxidant activity.
I've found the opposite. I do ok with Q10 (although no amazing benefits either). But Idebenone seems to ramp up my energy production and cause a lot of Adrenal stress, leading to a crash.
Garcia, a few ME patients do do well on CoQ10, so one must experiement and be very clued in to their body. I am extremely hypoxic.One thing about Idebenone, I cannot stress how potent it is, and it can cause very strong detox. I had to start on 1/8 cap a day and work up over a year to a reasonable daily dose. I did not tolerate a speck of CoQ10 of any brand, type or form. I knew I needed the support for my mitochondria (heart), and Idebenone saved my life. I am not advocating it for everyone, but it's my experience with it.Other family members are taking it for various things and to a one they cite it as the thing that helped them the most. I won't elaborate, but CoQ10 did nothing for them, but they had improvements on Idebenone. They had conditions that resulted in being hypoxic.
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